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Pennsylvania CaRI Database Information

Last Reviewed: Nov. 28, 2023

Pennsylvania Cancer Registry


Registry jurisdiction Pennsylvania
Type of review required Registry review only
IRB of record IRB of researcher affiliate institution
How to submit request:
Initial required documentation

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Step-by-Step data request submission process

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Other requirements and helpful information for researchers be specific in what data they need and why they needed. Just don't ask for everything.
Processing timeframe
  • For linkage studies and de-identified data release: Greater than 6 months
  • For patient contact studies: Greater than 6 months
Patient Consent and Contact Procedures
  • Patient consent is obtained by: Researcher
Pediatric research considerations None
Registry Fees $200 for first year of data, $100 for each after that. $.005 per record requested to link

Exceptions: Governmental requests
IRB Fees No IRB fees
Collaboration with local researcher required No