Indiana State Cancer Registry

Last Reviewed: Nov. 17, 2020

Registry jurisdiction	Indiana
Type of review required	Registry review only
IRB of record	IRB of researcher affiliate institution
How to submit request:	Researcher should submit request to Cancer Registry Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	• Updates on studies and analyses are required every 6 months • Any new researchers having access to the data must be updated on State Form 52104 and submitted to the registry contact If applicable, current IRB approval for continuation must be maintained, and updates should be submitted to the registry contact
Processing timeframe	For linkage studies and de-identified data release: 1 - 3 months For patient contact studies: N/A
Patient Consent and Contact Procedures	Active consent with the physician is required before patient contact. Physician consent is obtained by: Researcher Patient consent is obtained by: Researcher
Pediatric research considerations	None
Registry Fees	No registry fees
IRB Fees	No IRB fees
Collaboration with local researcher required	No

Indiana CaRI Database Information