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Kentucky CaRI Database Information

Last Reviewed: Feb. 8, 2019

Kentucky Cancer Registry


Registry jurisdiction Kentucky
Type of review required Registry review only
IRB of record IRB of researcher affiliate institution
How to submit request:
  • Initial cancer registry contact/discussion required prior to submitting application
  • Researcher should submit request to Cancer Registry
  • Cancer Registry via Online submission
Initial required documentation

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Step-by-Step data request submission process

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Other requirements and helpful information for researchers
Processing timeframe
  • For linkage studies and de-identified data release: Less than 1 month
  • For patient contact studies: 1 - 3 months
Patient Consent and Contact Procedures
  • Passive consent with the physician is required before patient contact. Physician consent is obtained by: Registry
  • Patient consent is obtained by: Researcher
Pediatric research considerations None
Registry Fees Fees are charged for data linkage studies and for patient recruitment. The fees are determined based on registry staff time. A conference call with registry staff and the researcher must be scheduled prior to applying for access to data in order to calculate a specific fee.

Exceptions: N/A
IRB Fees No IRB fees
Collaboration with local researcher required No