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NAACCR CaRI Database

California CaRI Database Information

Last Reviewed: May 31, 2019

California Cancer Registry


Registry jurisdiction California
Type of review required Both local/state IRB review and Registry review
Type of request forms required Separate IRB and Registry forms
IRB of record California Committee for the Protection of Human Subjects (CPHS)
How to submit request:
Initial required documentation

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Step-by-Step data request submission process

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Other requirements and helpful information for researchers Researcher should notify CCR via e-mail if CCR data is still needed to complete the approved study. Current approvals from CPHS and institutional IRB are required to retain the data . Please verify timeline for submission of application directly with CPHS.
Processing timeframe
  • For linkage studies and de-identified data release: 1 - 3 months
  • For patient contact studies: 1 - 3 months
Patient Consent and Contact Procedures
  • Patient consent is obtained by: Researcher
Pediatric research considerations None
Registry Fees For patient contact studies, additional fees are charged to update contact address (LexisNexis). Contact CCR at research@ccr.ca.gov for current fees. Fees for data linkages depend on the number of records to be linked and, if statewide files other than CCR (birth, hospital discharge, etc.) fees depend on the number of records and the number of years of statewide data to be linked. For more information please refer to https://www.ccrcal.org/retrieve-data/data-for-researchers/data-preparation-costs/

Exceptions: None
IRB Fees No IRB fees
Collaboration with local researcher required No