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Puerto Rico CaRI Database Information

Last Reviewed:

Puerto Rico Central Cancer Registry


Registry jurisdiction Puerto Rico
Type of review required Both local/state IRB review and Registry review
Type of request forms required Separate IRB and Registry forms
IRB of record The Comprehensive Cancer Center-University of Puerto Rico Institutional Review Board
How to submit request:
Initial required documentation

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Step-by-Step data request submission process

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Other requirements and helpful information for researchers
Processing timeframe
  • For linkage studies and de-identified data release: 1 - 3 months
  • For patient contact studies: 3-6 months
Patient Consent and Contact Procedures
  • Depending on the study, consent with the physician is required before patient contact. Physician consent is obtained by: Depends on Study
  • Patient consent is obtained by: Depends on Study
Pediatric research considerations None
Registry Fees Policy to be defined

Exceptions: Policy to be defined
IRB Fees To be defined

Exceptions: Policy to be defined
Collaboration with local researcher required Yes